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10/13/2026

October is Niemann-Pick Awareness Month. rareLife solutions proudly supports the individuals, families, caregivers, advocates, clinicians, and researchers working to improve the lives of those affected by Niemann-Pick disease.

Niemann-Pick diseases are rare, inherited lysosomal storage disorders that affect the body’s ability to process certain lipids. The most recognized forms are acid sphingomyelinase deficiency (ASMD) types A and B and Niemann-Pick disease type C (NPC).

Symptoms and disease progression vary widely. ASMD can affect the liver, spleen, lungs, and other organs, while NPC may cause neurologic symptoms, including difficulties with eye movement, coordination, speech, swallowing, and muscle control.

Because symptoms may overlap with those of other conditions, Niemann-Pick disease can be challenging to recognize and diagnose. Awareness can help drive earlier consideration, diagnosis, and access to appropriate care.

At rareLife solutions, we know rare. We think rare. And for us, it’s personal. This October, join us in raising awareness and supporting a future in which every person living with Niemann-Pick disease has the opportunity to be seen, heard, diagnosed, and supported.

Awareness drives understanding. Understanding drives action.

10/08/2026

Rare connections. Meaningful conversations. Real progress.

rareLife solutions is heading to ASBMR 2026!

Laura will be attending Friday, October 9, and Saturday, October 10, connecting with clinicians, researchers, and collaborators from around the world who are advancing bone and mineral research.

At rareLife solutions, we know rare. We think rare. And we know that when the right people come together, meaningful connections can spark meaningful progress.

At ASBMR? Let’s connect.

09/08/2026

What if you had a publications tool that could show you not just what’s been published—but what’s missing and where the opportunities are?

That’s the power of mApIt.

As our client puts it, mApIt offers a “fundamentally different approach to publication intelligence”—helping teams uncover insights, identify opportunities, and build more meaningful, market-responsive programs.

Less searching. More strategy. Greater impact.

Ready to uncover what's missing? Schedule a demo today: https://mapit.rarelifesolutions.com/demo

08/18/2026

The future of cardiology is being shaped by connection, collaboration, and new possibilities.

At the ESC Congress 2026 in Munich, Laura Wuerth will be connecting with leaders and innovators exploring how AI, breakthrough data, and patient-centered care can transform cardiovascular health and translate innovation into real-world impact.

If you’ll be at ESC, meet with Laura and explore what’s next!

08/11/2026

August is Spinal Muscular Atrophy (SMA) Awareness Month, and rareLife solutions proudly supports the individuals, families, caregivers, advocates, clinicians, and researchers working to improve the lives of those affected by SMA.

SMA is a rare, progressive genetic neuromuscular disease caused by mutations in the SMN1 gene, resulting in a deficiency of the survival motor neuron (SMN) protein that is essential for healthy motor nerve cells. As these cells are lost, individuals with SMA experience progressive muscle weakness that can affect breathing, eating, sitting, crawling, walking, and other everyday activities.

SMA affects approximately 1 in 15,000 births in the United States, and 1 in 50 Americans is a genetic carrier. While advances in newborn screening and disease-modifying therapies have transformed the outlook for many individuals, continued awareness, research, early diagnosis, and access to care remain critical.

💜 It's also important to recognize that while SMA affects muscle function, it does not affect a person's intelligence, ability to learn, or capacity to build meaningful relationships. 💜

At rareLife solutions, we know rare. We think rare. And for us, it's personal. We are committed to advancing science, amplifying patient and caregiver voices, and supporting the communities driving progress across rare diseases.

This August, join us in raising awareness, inspiring understanding, and supporting a future where every person living with SMA has the opportunity to thrive.

Awareness drives understanding. Understanding drives action.

07/28/2026

Rare disease is complex—and so are the people living it. At rareLife solutions, we combine scientific expertise with a deep understanding of patients, caregivers, and communities to build solutions that improve outcomes and access.
Learn more at www.rarelifesolutions.com

07/21/2026

What if your biggest publication opportunity is the one no one has identified yet?

Rare disease publication strategy isn't about managing more—it's about uncovering what's missing.

mApIt combines AI with human intelligence (HI) to identify evidence gaps, uncover strategic opportunities, and build market-responsive publication programs that shape the rare disease landscape.

Ready to uncover what's missing? Schedule a demo today: https://loom.ly/wLWp2v0

06/24/2026

Today we celebrate Day and the power of medical communications to advance science, improve understanding, and connect communities.
In rare disease, every publication, presentation, patient story, and scientific exchange matters. Effective medical communications help accelerate awareness, reduce diagnostic delays, support informed decision-making, and bring the voices of patients with rare disease and caregivers into the conversation.
At rareLife solutions, we know rare. We think rare. And for us, it’s personal. We are proud to partner with industry, advocates, clinicians, and rare communities to turn complex science into meaningful impact.
Here’s to the professionals shaping the future of health care through science, strategy, and communication.

06/18/2026

We are proud to share that Mukund Nori, PhD, MBA, CMPP, Vice President, Medical & Scientific Affairs at rareLife solutions, has been appointed Editor-in-Chief of Future Rare Diseases.

This appointment reflects Mukund's longstanding commitment to advancing scientific excellence, publication ethics, and meaningful communication in rare disease. In addition to his extensive experience in medical and scientific affairs, Mukund previously served as Chair of the Ethics and Standards Committee for the International Society of Medical Publication Professionals (ISMPP), helping shape best practices across the industry.

As Editor-in-Chief, Mukund will help guide the future of a journal dedicated to increasing visibility, knowledge sharing, and collaboration across the rare disease community. Future Rare Diseases serves as an open-access platform for clinical and translational research, connecting scientists, clinicians, policymakers, patient advocates, and patients to accelerate progress in rare disease research and treatment development.

At rareLife solutions, we believe that advancing rare disease science requires strong leadership, scientific rigor, and a commitment to amplifying the voices of rare communities. We are thrilled to see Mukund bring those qualities to this important role.

Please join us in congratulating Mukund on this well-deserved achievement.

06/16/2026

We are honored to share that rareLife solutions has been recognized as the 2026 Outstanding Industry Partner by Purdue University Northwest (PNW).

This recognition reflects a partnership built on a shared commitment to innovation, learning, and addressing real-world challenges.

When developing mApIt, our AI-Powered Strategic Medical Publications Insights Tool, we adopted an academic-industry collaboration model and partnered with the PNW College of Technology. Through our collaboration with PNW, we gained access to exceptionally talented masters and doctoral students, as well as faculty expertise, including leadership from the College of Technology. In return, students gained hands-on, real-life experience developing a solution designed to address pressing needs in medical affairs and medical publications.

PNW's College of Technology works with more than 30 corporate and industry partners, making this recognition especially meaningful to our team.

At rareLife solutions, we believe that the best innovations emerge when diverse perspectives come together around a common goal. This partnership demonstrates the power of connecting academic talent with industry expertise to create solutions that can help advance the future of health care and scientific communications.

Thank you to the students, faculty, and leadership at PNW for being outstanding collaborators on this journey.

We know rare. We think rare. And we are proud to think differently.

https://loom.ly/e47fxFc

Address

606 Post Road East, #397
Westport, CT
06880

Telephone

+18446638642

Website

http://rareLifesolutions.com/

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