Hearts with River

08/28/2026

River got so excited on drums yesterday. His therapist was here and noticed how much River loves the drums. One thing that is crazy is that whenever River is not having the best day with his breathing or secretions, getting on the drums always makes it better for him. It's amazing how when we do something we love it makes us feel better ❤️

08/28/2026

My wife Kate is going live to answer your questions tomorrow Saturday night at 10:30 pm EST!

08/28/2026

08/28/2026

Hey friends! I went live to answer questions yesterday night and it was late so I'm reposting the live here. Have a beautiful day and thank you so much for being in our lives.

08/27/2026

Our church had a nice Display of Back to the future for the kids. It was such a nice service. Daisy was dancing and twirling to the music and it felt so good to sit with River, think about life and see how far we have come ❤️

I feel an amazing connection with some of you guys. Clearly a soul reunion 🌞

08/25/2026

The rezzimax is another professional tool you guys helped us get to help stimulate River.

08/24/2026

Does River have voluntary movement or just involuntary movement?

This is a video I had posted a few months ago but some people told me they could not find it on Facebook so here it is!

08/22/2026

I had a great time at the ocean for a last minute sunset and it felt so good to be out there and feel the breeze. There was a puddle of shallow warm water and we played in it. River was purring and liking the experience. Daisy was of course excited to be at the ocean once again and like usual did not want to leave haha

08/21/2026

Daisy is eating and River is relaxing. Right before we go to see the sunset🌞