05/29/2026
Kinleigh does these monthly infusions! They were supposed to help her CRMO unfortunately they are not working as hoped. We have added humira at home and hoping that helps! We may be dealing with SAPHO its another auto immune very close to it but can be harder to treat! It can also continue into adulthood! Kinleigh has shown so much strength and resilience through this journey! She is a Rare Disease Warrior!