10/30/2024
Moment of transparency: so I was diagnosed with closed spina bifida at age 13. I spent years in PT, back braces and swallowing massive amounts of Naproxen daily. At 19, I got pregnant with my first child and experienced my first bout of intermittent partial paralysis. I was told then that I could never weigh more than 140lbs or the weight shift could cause permanent paralysis. I was told not to have any more children and that I needed to get my spine fused. I asked what my chances of paralysis without surgery were and was told that I would most likely be in a wheelchair by age 35. I asked what my chances were with surgery and at that time I had a 50/50 chance on walking in but not being able to walk out. So I told them I would take my chances with GOD since they were going to give me until at least 35. Well I’m 51 now and I had been doing pretty good until recently. Yes, I have had chronic pain and days where I couldn’t walk well. But it wasn’t anything I wasn’t used to. Over the years I also got a sciatica diagnosis to go along with the spina bifida. So that was new layer to get used to. A couple of years back I had a couple of nasty falls that I took full bore on my tailbone. One was me getting #8 out of his car seat and I stumbled so had to make a choice as to who was hitting the ground. Of course, I chose me. I never totally healed before I fell again while roller skating; trying to spin. I never healed right. Then I was rear ended in a hit and run accident last year that led to an ER visit for neck and back pain that they diagnosed as pinched nerves. Now, I also have arthritis in my spine according to the most recent doctor I have visited. I went because I am starting to have trouble with my left leg. I don’t think that I have much walking left in me but it’s okay because I wasn’t even supposed to have this much. I could be angry and talking about how unfair life is because I’ve experienced so much in the past 13 months. But I still think that my life is actually kind of cool. I got a bunch of kids that I love. I have two beautiful granddaughters. I make and create all sorts of arts and crafts. I can sit in my backyard and shoot bolts and arrows into a variety of targets. I have amazing siblings. But most of all, I get to wake up every morning and see a new day. I get to experience new possibilities. I get to have new thoughts. I get to love folks. I get to smile and laugh even, or maybe especially, in the darkness. And that is exactly what life is all about; Pushing forward and finding your strength while cultivating your tribe. Go out there and live your best life! (Hugs)