08/12/2025
AI Overview
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Several organizations are working to raise awareness and support research for Lynch Syndrome, a hereditary condition that increases the risk of certain cancers. These organizations are dedicated to improving the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening. Some of these include:
The Jacqueline Rush Foundation (JRF): Focuses on improving public and medical awareness of Lynch Syndrome, raising funds for research, and providing support, education, and resources to Lynch Syndrome carriers and their families.
The Full Life Foundation for Lynch Syndrome: Dedicated to funding and researching a cure for Lynch Syndrome and related cancers, as well as supporting affected communities and raising public awareness.
Lynch Syndrome International (LSI): A global community that provides support, increases public awareness, educates the general public and healthcare professionals, and supports Lynch Syndrome research efforts.
AliveAndKickn: A hereditary cancer foundation whose mission includes support for research, education, and screening for Lynch Syndrome and associated cancers.
The Colon Cancer Alliance for Research and Education for Lynch Syndrome (CCARE): An all-volunteer organization that educates the public and healthcare professionals about Lynch Syndrome and helps fund research for a cure.
In addition to these organizations, the Dana-Farber Cancer Institute in Boston, Massachusetts, has opened a Lynch Syndrome Center. This center is dedicated to providing genetic counseling and testing to those at risk, as well as a new model of coordinated care for individuals living with Lynch Syndrome.