10/25/2025
💜Today is Postural Orthostatic Tachycardia Syndrome (POTS) Awareness Day.
Living with a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) is full of challenges on its own, but EDS and HSD often present alongside other diagnoses such as POTS.
POTS is an abnormal increase in heart rate when standing without a drop in blood pressure.
POTS is diagnosed when a person has all of the following:
🥴Frequent symptoms that get worse when standing (including lightheadedness, palpitations, tremor, generalized weakness, blurred vision, exercise intolerance, and fatigue)
🫀An increase in heart rate of ≥ 30 beats per minute when moving from lying down to standing (or an increase of ≥ 40 beats per minute in people 12 to 19 years old)
❌Absence of orthostatic hypotension (meaning there is not a > 20 mm Hg drop in systolic blood pressure when moving from lying down to standing)
Learn more about POTS, diagnosis, and management strategies, and find video resources here: https://www.ehlers-danlos.com/dysautonomia/
Reduce POTS Symptoms - Doctor Clair Explains: https://youtu.be/c_cUdS5NtKU?si=-6X48kgJFvD2iMnJ
Tips & Tricks for Management with Emily Rich, PhD., OTR/L https://youtu.be/LTKTq-srCHU?si=-bRdYhNftLZ77idQ
