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PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes.

Showing up for the Friedreich’s Ataxia community. This week, the PatientsLikeMe team joined patients, families, care par...
10/13/2026

Showing up for the Friedreich’s Ataxia community.

This week, the PatientsLikeMe team joined patients, families, care partners, researchers, and advocates at the FARA symposium in Philadelphia and National Ataxia Foundation Walk N' Roll in Massachusetts.

These gatherings bring people together to share experiences, build connections, and move progress forward. They’re also a reminder that people living with FA, and those supporting them, must remain at the center of the conversation.

Thank you to FARA and everyone who welcomed us. We’re grateful to listen, learn, and stand alongside this community.

You don’t have to wait for something to be wrong to start paying attention to your metabolic health. ❤️ shares why midl...
10/09/2026

You don’t have to wait for something to be wrong to start paying attention to your metabolic health. ❤️ shares why midlife is a great time to check in on your numbers and see what you can do to support your health moving forward.

Want to learn more about how to be proactive and where to start? 🔗 Read the full Q&A: https://www.patientslikeme.com/blog/heart-health-midlife

10/08/2026

Feeling overwhelmed? Sometimes, reconnecting with yourself can be as simple as noticing the little things around you.

shares how, as a single mom and business owner, she practices mindfulness by grounding herself in everyday moments, like feeling her feet on the floor, noticing the movement of a spoon while cooking, and simply pausing to be present. You deserve to take a moment to reconnect with yourself. 🤍

When memory changes become something more, it can be hard to know what’s normal and what isn’t.​ Maybe it’s confusion, m...
10/07/2026

When memory changes become something more, it can be hard to know what’s normal and what isn’t.​ Maybe it’s confusion, mood shifts, forgotten conversations, or moments that feel unfamiliar.

Many people find themselves quietly asking: What’s going on?​

​We’re sharing information about clinical trials that may be relevant for people experiencing Alzheimer’s disease and related changes in mood or behavior.​

​See if one may be a fit: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605317
Learning more is only a first step, and participation is always voluntary.​
​

10/07/2026

Registered dietitian, shares simple ways to support long-term metabolic wellness, without the all-or-nothing mindset. 👏

10/06/2026

It's that time of year! How does .fa.nys_ataxia get her kids ready for school while managing Friedreich's Ataxia? Check out her tips and tricks!

Want to connect with others who understand life with FA? Join the Friedreich’s Ataxia community on PLM to share experiences, ask questions, and find support. 🩵

https://www.patientslikeme.com/groups/friedreich's-ataxia/overview

Let’s get moving together! From October 5–12, join Kara () for a week of getting outside, moving your body, and making t...
10/05/2026

Let’s get moving together! From October 5–12, join Kara () for a week of getting outside, moving your body, and making time for yourself. Whether it’s a 10-minute walk around the block or a longer stroll, it all counts. 🩷

Join us on WomenLikeMe, log your daily walks, and let’s connect with other women going through menopause.

You don’t have to do it perfectly, just show up. Come move with us! bit.ly/4AW786n

10/01/2026

Today is NICU Awareness Day. 💜 Kathryn, a postpartum doula and NICU mom, shares a little about her own experience and the emotions that can come with leaving the hospital without your baby.

Grief, anxiety, sadness, and so many other feelings are normal. You’re not alone, and you deserve the space and support to process what you’ve been through and heal.

Clinical trials play an important role in advancing Alzheimer’s disease research for individuals and families affected b...
09/29/2026

Clinical trials play an important role in advancing Alzheimer’s disease
research for individuals and families affected by the disease.​

We’re sharing research study options for Alzheimer’s disease, where
eligible participants may have the chance to learn more from a study team.​

Learn more: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605317

What does postpartum really look like? And how can you feel a little more prepared for those first days at home? 🤍Join p...
09/28/2026

What does postpartum really look like? And how can you feel a little more prepared for those first days at home? 🤍

Join postpartum doula Kathryn Davis on Wednesday, September 30 at 9 AM PT / 12 PM ET for an honest conversation about those early days after bringing baby home.

We’ll talk about:
✨ What those first 24 hours at home can look like
✨ Physical and hormonal changes during recovery
✨ Practical ways to prepare for postpartum
✨ Things you may not expect in those early days
✨ And plenty of time for your questions!

📅 Wednesday, September 30
⏰ 9 AM PT / 12 PM ET
👋 Join us live and bring your questions! Event is free but you must register ahead of time: https://zoom.us/meeting/register/Ya4GQ6bgQJiczlOGBn7mXg

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