PatientsLikeMe

PatientsLikeMe Get started at www.patientslikeme.com.

PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes.

If you’ve ever felt caregiver guilt for taking time for yourself, this is your reminder: you don’t have to earn rest.Sto...
06/17/2026

If you’ve ever felt caregiver guilt for taking time for yourself, this is your reminder: you don’t have to earn rest.

Stop feeling guilty for taking care of yourself 💕

06/15/2026

Being a mom with Friedreich's Ataxia doesn't always look the way Tiffany imagined it would. 💕

In this honest and heartfelt video, she shares how FA has changed her approach to parenting, the importance of accepting help, and why she chooses to focus on the love, compassion, and perspective she can give her children instead of the things she can't do.

06/12/2026

We’re recruiting adults in the U.S. living with inflammatory bowel disease (IBD), including ulcerative colitis and Crohn’s, who haven’t had success with certain treatments.

✔️ Open to men & women with moderate to severe IBD
✔️ No placebos—everyone receives the study medication
✔️ Up to ~1 year participation (if it’s working for you)
🚫 Not eligible if you have an active infection, certain intestinal conditions,
recent/planned major surgery, or cancer history (some exceptions may apply)

Be part of advancing future IBD research and helping shape what’s next 🩵
Learn more and see if you qualify: bit.ly/4cMy3Gh

🩵 Partner Spotlight: Synapticure was co-founded by ALS advocate Brian Wallach and his wife, Sandra Abrevaya, after they ...
06/11/2026

🩵 Partner Spotlight: Synapticure

was co-founded by ALS advocate Brian Wallach and his wife, Sandra Abrevaya, after they experienced firsthand the gaps and barriers in ALS care.

Waiting months to see a specialist and having to travel long distances just isn’t realistic for a lot of people living with ALS. So they built something better: virtual, patient-first ALS care that helps close those gaps.

Synapticure is available to PatientsLikeMe members in all 50 states, offering things like virtual specialist visits, genetic testing, clinical trial support, and early access programs.

Their goal is simple: help people access expert ALS care in weeks, not months.

Learn more about Synapticure: https://bit.ly/4xpxHip

Summer is full of messages about losing weight fast, but many of those approaches can do more harm than good. If your go...
06/04/2026

Summer is full of messages about losing weight fast, but many of those approaches can do more harm than good. If your goal is to lose weight while supporting your heart health, focus on habits you can maintain long after summer ends:

☀️ Choose nutrient-dense foods over restrictive diets
☀️ Aim for protein and fiber to help keep you satisfied
☀️ Stay active with movement you actually enjoy
☀️ Drink plenty of water throughout the day
☀️ Prioritize sleep and stress management

06/04/2026

The PatientsLikeMe Friedreich’s Ataxia (FA) community is here! 💙⁠
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We're building a space where people affected by FA can connect, share experiences, find support, and learn from one another. We are working with industry leaders and medical experts, as well as several FA content creators, to build out THE go-to space for anyone with FA to meet, talk, and support each other. ⁠
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Join the free community and become one of our first members. See you there! https://bit.ly/4frve0y

Some days, you need a break from your kids and responsibilities but the day keeps moving anyway. If today feels hard, gi...
05/27/2026

Some days, you need a break from your kids and responsibilities but the day keeps moving anyway.

If today feels hard, give yourself a little extra grace. Even small moments of rest count. 💛

No one prepares women for how much hormones can impact daily life. But these changes are real, and women deserve better ...
05/22/2026

No one prepares women for how much hormones can impact daily life. But these changes are real, and women deserve better conversations, better education, and better support through every stage of hormonal health.

Join the WomenLikeMe community for support and answers. You're not alone 💕

Some days you’ve got the energy for full conversations, and other days… even an emoji reply is enough 💬😔🫣🫠🤷‍♀️What emoji...
05/21/2026

Some days you’ve got the energy for full conversations, and other days… even an emoji reply is enough 💬😔🫣🫠🤷‍♀️

What emojis are you using on days you feel bleh?

We loved partnering with RESOLVE: The National Infertility Association for their Month of Action webinar, How to Share Y...
05/19/2026

We loved partnering with RESOLVE: The National Infertility Association for their Month of Action webinar, How to Share Your Story to Reach Others. 💛

One thing that really stood out from the conversation was that sharing your story can help someone else feel seen, understood, and a little less alone. For many attendees, it was the first time they had ever shared their experience out loud, and while it felt vulnerable, it also felt empowering.

If you’ve ever struggled to put your experience into words, this conversation is a powerful reminder that your story matters. Watch the full webinar here: bit.ly/4dHjwwi

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