09/12/2026
A 9-year-old boy who has spent nearly his entire summer in the hospital fighting complications from a rare genetic skin condition looked into a camera and asked strangers for something heartbreaking:
“Please pray for me.”
Jamison was born with Harlequin ichthyosis, a severe disorder that causes the skin to grow abnormally thick and tight, leaving patients vulnerable to painful cracking, infections and problems regulating body temperature and hydration.
He has lived with it his entire life.
But his mom, Alicia, says what has happened this summer has been the scariest stretch they have ever faced.
“I have been in the hospital for this whole summer,” Jamison says in the video. “I got nothing to do… it doesn’t make me happy.”
Then the 9-year-old says something that is difficult to hear:
“I really am not happy about my life. This is the worst life ever, and it feels like hell.”
And then again:
“Please pray for me.”
Alicia says two days before Jamison recorded that video, his symptoms became so severe that even his pain medications at their maximum prescribed doses were not controlling his pain.
He was crying, vomiting and saying things that broke his mom’s heart.
She says Jamison is also battling two bacterial infections that are taking a tremendous toll on his already fragile body.
“In all of these years going through this I can say this has by far been the scariest and worst experience for the both of us,” Alicia shared. “Mentally, physically, and emotionally.”
The encouraging news is that Jamison is more stable today.
But this family is facing another incredibly difficult moment.
Alicia says she is preparing to sit down with 12 specialists, along with hospice and palliative-care teams, for what she calls a “care moving forward” meeting.
“I’m so not prepared.”
Imagine hearing your 9-year-old tell the world that he is tired of the hospital, tired of hurting and unhappy with the life he is living — and then having to walk into a room with that many doctors to talk about what comes next.
Alicia has also made it clear that she will continue sharing the difficult parts of her son’s journey because this is their reality.
Right now, they don’t need judgment.
They need exactly what Jamison asked for.
Prayer. 💙🙏
Please pray for relief from his pain.
Pray these infections respond to treatment.
Pray for wisdom and compassion from every specialist helping guide his care.
And please leave Jamison a personal message to read here reminding him just how special he really is.
Jamison asked us plainly:
“Please pray for me.”
Let’s make sure this little boy knows people heard him.
