20/09/2022
Millions Missing 2022.
Yesterday was the awareness day for Myalgic Encephalomyelitis.
The annual parliamentary protest was cancelled due to the state funeral and I just wasn’t well enough to put anything together yesterday so please forgive the lateness!
We call for equality, treatment and research.
Equality for all people with M.E who have been stigmatised, ignored and mistreated.
Treatment, based on science and genetics, rather than harmful GET or Lightning Process treatments.
Research, WE NEED FUNDING. Real funding, real grants, real research! There is more money put into male pattern baldness than there is for this disabling, life changing chronic disease.
In the 1960’s/70’s and long before people with M.E were wrongly diagnosed with psychiatric disorders and unfortunately this type of rhetoric has carried through to today, I’ve had colleagues tell me it’s all in the mind, or its all about my outlook.
As our symptoms are often invisible we can often get funny looks for using mobility aids, blue badge spaces and wheelchairs or the general consensus is that we’re lazy.
There are just so many reasons why raising awareness is so important to the M.E community.
Please help us raise awareness! Talk to us, ask us questions or better yet do your own learning and share with everyone! Even a post share helps get the word out.
(sorry for the typos on my @ I honestly just don’t have the energy to proof read today)
