05/07/2026
Last week, something truly special happened.
Almost a year ago, our lives changed completely. Luc was told he most likely had pancreatic cancer. In the end, it wasn't cancer. It was IgG4 Related Disease, a rare autoimmune disease that can closely mimic cancer and is often difficult to recognize.
During his journey, he kept running into the same problem. Reliable information was incredibly difficult to find. There were endless questions and very few answers. Finding the right specialist wasn't easy. Too often, he felt alone in the search.
So he decided to build what he wished had existed when he needed it most.
www.igG4.org
A free platform where patients, families, caregivers and healthcare professionals can find trusted information, scientific publications and specialists dedicated to IgG4 Related Disease. A place created to help others find answers faster than we did.
What makes this even more meaningful is that Professor José Ballarín Castán, Patient Advocate and President of the European Federation for IgG4 RD, recently invited Luc to collaborate on this initiative.
I couldn't be prouder.
Today, I have one simple request.
Please share this post.
Someone, somewhere, may be lying awake tonight, searching for answers, just as Luc was less than a year ago. Your share might help a patient receive the right diagnosis sooner. It might bring hope to a family feeling lost. It might even change a life.
Sometimes, one shared post can make all the difference.
Please visit and share:
www.igG4.org
Thank you from the bottom of our hearts. 🤍
Luc and Vanessa
