10/24/2023
Sharing a story I wrote as part of the school project-
The theme included āpower of friendship ā and āovercoming disabilityā.
It is a bit of a sad story- I think I was influenced by the book series I read recently- āHunger Gamesāš
Miriam Cherian
10/23/23
Dear Diary,
How to start? Well, my name is Sofia Whitlock, and today I turn 13 years old. I have no idea why my parents would give me a diary as a birthday gift. I mean, why should I record my memories, thoughts, feelings if Iām not going to be able to share themā¦You know what? I should just cut to the chase. Thereās no beating around the bush. If my parents have given me a diary now, it is more likely than not that itās because I have diffuse intrinsic pontine glioma.
You donāt know what this is, do you? Then letās start from the beginning, all the way back to when I couldn't possibly imagine the life that I have now. Honestly, even now I find it difficult to grasp on to the reality that is mine.
It all starts during the third period on a gray Monday in October. Weāre in the middle of a read aloud when the phone goes off. Ring! Ring! Ring! Ring! My LA teacher, Mrs. Roberts, starts for the phone. She picks it up with a click, and then proceeds to talk to the office. āOh okay, thank youā¦Sofia, your parents are here to pick you up. Please head down to the office.ā
I wearily get up from my seat, gently putting my book back on the table. My best friend, Fiona, raises an eyebrow at me.
āWhatās happening?ā she whispers. I shrug in response. I donāt recall my parents saying they would pick me up from school last night, so what could it be then? Did they just forget, or is it a surprise? Iām not in trouble, right? Iām sure I did nothing wrong.
I steadily weave through the tables of the classroom, and as I cross the threshold, Mrs. Roberts exclaims, āHave a great rest of your day, Sofia!ā
āYou, too.ā I quickly respond. When I finally reach the school office, my parents stand in front of me, and instead of greeting me with a smile, they don a look of concern on their faces.
āHi Sofia, weāre going to the doctorās now. She said that she wanted to discuss last weekās checkup with us. All right?ā Mom says.
āOkayā¦ā I reply. We go to the back of the office and exit from there. The whole way to the car and then to the doctorās, we all remain silent. I feel as if there is a tension between us, but Iām not sure why. We pull up to our townās main hospital, startling white and gleaming despite the little amount of sunlight. Until we see the doctor, my memory blurs, but I vaguely remember a wristband slapped on to my wrist and thoughts growing more frantic. It canāt possibly mean anything good to have to visit the doctor out of the blue.
The door to Dr. Paulās tidy room creaks open, and after greeting each other, we settle down into plush chairs.
āSofia, itās great to see you again. How have you been doing?ā Dr. Paul makes a shabby attempt at smiling.
āGoodā¦ā I say.
āGreat! So when we looked at your results from last weekās checkup and blood test, we noticed something a bit off,ā she starts, gaze directed at my parents. She then averts her gaze to me, and something about the way she stares at me makes me uncomfortable. āWe think you haveā¦diffuse intrinsic pontine glioma. Itās a brain tumor with a very low survival rate. Weāll need you immediately admitted to this hospital to make sure. Iām so very sorry, Sofia.ā
I canāt move, canāt speak, canāt even think. I am paralyzed with fear.
October 16th, 2023
Dear Diary,
Iām sorry I have written in this for such a long time. Iāve just been deciding what I want to write in this. Figuring out how to gather my jumble of thoughts into one clean entry.
Itās been 1 ½ years since I found out about my illness. As I write this, Iām in my room, my home for the last time, staring up at the stars through the skylight in my room, laying on the plush blankets in my bed. I will spend the last few months of my life in a dingy hospital room, the same room Iāve been in out of for what feels like a lifetime. For me, it probably is. My mom says Iām lucky. Only 5% of those diagnosed with diffuse intrinsic pontine glioma survive for two years. Though at this point, Iād rather not have to wait so long, because itās always the same, like Iāve been living a day on repeat. Iām just supposed to suffer through a few more months knowing I will pass away. Every day, my parents bring me pastries from the bakery, and I lay on the bed, a million tubes connected to me. My best friend Fiona comes every day. Thatās probably the best part of my day. We just talk about her school work, whatever. It feels nice to be normal for a little bit, and she knows I need that. When I talk to my parents, itās just not the same.
October 31th, 2023
Dear Diary,
Hereās how a day at the hospital is:
āHi honey, we brought macarons today!ā Mom says all sing-songy.
āHow are you doing, Sofia?ā my dad asks. I gently take the pale blue box from his hands, brushing my wavy brunette hair out of my eyes.
āIām doing great, howās the bakery? Thanks for bringing these, too. You know theyāre my favorite,ā I reply with a grin. Thoughts of passing away, fatigue, the itching to get out of this stupid hospital bed. Yeah, Iām doing great. Every day I say āIām greatā, or āIām doing well.ā But Iād rather be happy for my parents. Iām already a burden with my illness, why should I burden them with my emotions?
āThatās my Sofia. A real fighter,ā Dad exclaims proudly. I devour the macarons, for they truly are my favorite. A silence falls between us as I eat.
āYou know, Fiona made it onto the soccer team,ā my mom starts. I immediately light up.
āReally! I knew she would make it!ā I feel like jumping up, but Iām tied down by the bed.
āSheāll be here in half an hour. The bakeryās doing great by the way. We have to head out now to try some new recipes. Are you sure you donāt need anything?ā
āI'll be alright. No need to worry about me.ā And now Iām stuck on my own thoughts. Thereās one thing that keeps coming back to me, no matter what. Why me? Why do I have this fate? What did I do this deserve passing away so early? No matter how long Iām left alone to my thoughts, staring at the same place on the startlingly white walls of the room or watching some boring show, I canāt think of the answer. My deep thought is interrupted when Fiona bursts into the room, her long blonde hair pulled back into a ponytail. āCongratulations!ā I exclaim. āIām so proud of you!ā
āIām so happy I made it on the team! I know you wouldāve, too.ā Fiona plops down on the one chair in the rooms, her green eyes shining with excitement.
āI donāt know about that. Youāre such a great player.ā
āI'm really, really excited to start playing. The season starts next spring.ā
Next spring. Well, what did I expect? That soccer would start next week? Iāll miss most of the season, if not all of it. āOhā¦Would you like a macaron? I saved one for you.ā I wonāt allow myself to think about it any more.
Fiona temporarily grimaces as she realizes what she just said. āYep!ā
āYouāve got to tell me all about it!ā
āDonāt worry, I will.ā It goes on and on like this for an hour, until she has to leave. Still being able to talk to my best friend might be the only thing keeping me calm right now.
November 1st, 2023
Dear Diary,
I donāt know whatās been with me today because I just feelā¦down. My thoughts wonāt stop nagging me. What did I do to deserve this? What was the life I couldāve lived? Could I have taken over the bakery, or could I have played soccer professionally? What is so wrong with me that I end up with this fate? I feel like Iām in a rut. That thereās no way out, no choice for me. I already know my future. Itās all been laid for me already, so why should I be sad? Shouldnāt I be used to it? Shouldnāt I accept it? Thereās no point to thinking like this, all depressed and alone, yet I canāt stop.
The only highlight to my day is when my nurse, Nurse Hawkins, comes in. She says the best Iāve heard in months.
āSofia, we think it would be best for you at this point to go outside for at least once a day starting now. I know it can get really boring here. We donāt want you bored for your last few months here,ā Nurse Hawkins says with a smile. My gloominess is temporarily lifted. As she disconnects the tubes, the heaviness of the day lightens little by little. āNow we can only go outside for ten minutes, all right?ā
āGot it,ā I reply. Itās all I can do to not run all the way there. When I get outside, the sun gleams on my olive skin, my brown eyes shining in it. I slink down into a pile of leaves, looking up at the sky. Itās beautiful, a clear blue with the red and gold leaves from trees falling down onto me. I get up and first stroll around, then run through the grass and leaves. I might look crazy, but who cares? For once, I feel blissful. Then itās time to go.
I reluctantly get up and stride to the room, up the elevator. The ugly stench of hand sanitizer and antiseptic fills my nose. Iāve grown to hate the smell. However, as Iām about to cross the threshold into my room, I feel something tugging at my thoughts. Sadness? Yes, but thatās not what Iām talking about. Anger? No. Yearning. I feel a yearning for something. Iām just not sure what.. I turn around, facing Nurse. Hawkins. āI canāt go in.ā
āWhat do you mean, honey?ā she questions.
āI mean I canāt go in.ā My mouth is moving faster than my thoughts. What do you think youāre doing right now?
āHoney, youāre going to have to go in,ā she says patiently at first. When I continue to stand in place though, her voice sounds more irritated. āYou have to go in now, otherwise Iāll be forced to call security.ā WHAT ARE YOU DOING? Turn around, go back inside. But all of it, all my usual responsibility and rationality has gone away in a blink of an eye. I freeze in place, while the security guards approach the room. It all doesnāt seem quite real until one of them picks me up, and out of blue Iāve gone crazy.
āJust leave me be. Just leave me be! JUST LEAVE ME ALONE!ā I scream until Iām plopped onto the bed. Then, my screaming diminishes to sobbing. āWhy should I stay here? My life will end soon enough either way.ā
My parents run into the room a few minutes later.
āSofi, whatās wrong? We got called by the hospital. We came here as fast as we could,ā Dad asks. For a minute I donāt answer, so I just sob into my lumpy pillow. Finally, I croak out, āI donāt want to die.ā
āOf course you donāt,ā Mom says, settling next to me on the bed. I slowly turn around and face her, the same brown eye as mine looking at me. As I look calmer, nurses rush in and reconnect my tubes.
āI donāt want to keep saying Iām okay. I hate it because I feel like Iāll never be okay again. I hate laying in this bed all day. I hate getting frailer and weaker. I hate not going to school. Not getting to be normal.ā At this point Iām yelling, and the nurses are out of the room. I say the last part of my rant in a voice barely above a whisper. āI hate being a burden to you.ā
āWe always knew you werenāt really okay. How could someone be okay in this situation? But we knew you werenāt ever going to admit it. We-ā Fiona rushes into the room.
āI just got back from school.ā She walks towards me, stopping at the bed. āWhat happened?ā
My rant has diminished to sniffles.
āI..Iā¦Iām just not worth it. Iām not worth all of your time.ā It doesnāt take anymore explaining to her. āSofia, Iām not sure what you think of me if you think I would just turn away from you like that. I know, Iāve known every second you got your illness, that if I was in your place, you would have done the same for me. Anyone who would do that deserves to have someone on their side. The way you stay strong for us, itās almost like weāre a burden for you.ā My parents nod in agreement.
And I think, through my turbulent, gloomy, helpless thoughts, Maybe thatās all I need to hear.
March 31st, 2024
Dear Diary,
Itās days or less until my time here comes to an end. Really it feels a minute away. I feel weaker, I feel frailer, and I feel much more fatigued. Most of all, though, I feel at peace. At peace with the world. At peace with this illness that has infected my life. I think in these last few months Iāve realized how lucky I am. Lucky that I survived this long. Lucky to have my parents. Lucky to have my best friend by my side. So lucky to have my best friend. Itās all I really needed. Fiona made me see how Iāve taken so many things for granted, before and after being diagnosed. I no longer reminisce in the past. Iām content with my life now. Maybe itās good my time ends here, when Iām finally at peace with it. The more I reflect, the people in my life have been so much better to me than I deserve. This life is all I need, all I want.
Well, the desire for sleepās driving me insane. I guess Iāll turn off the lights now. Maybe for the last time.
Good night.