Long Island Creative Vortex (Live)

05/13/2025

Hanging with the Ster Man

07/11/2024

Rode 10 miles in the rain this morning to get a feel for what I will do if I get stuck in bad weather. It’s not the greatest, but it also won’t be a problem. I can wait out a thunderstorm, but if I have to, I feel pretty confident I can ride several miles in a light rain.

So this is it. I’m as trained as I’m gonna get. Tomorrow I drive to Lancaster to spend some time with Babs (Barbara Johnson) / than I head to Berwick (also known as the middle of nowhere) to pick up my father (Al Hurnyak) and than we make out trek up to Buffalo.

I can’t believe I’m finally here, but I’m ready for this physically and mentally.

I’ll post regular updates over the next 10 days.

Thanks again for all the support!

Thanks to my wife Carol Denise Volk-Hurnyak for having my back through all of this and putting up with my crazy ass.

Thanks to my father for wanting to contribute and for being my ride along.

Thanks to Laura Price Hurnyak for putting up with Al’s crazy ass.

Thank you to Michael Zinn for our pre-ride conversation and for giving me something to look forward to when this is over.

Thank you D'Ann Ressler for everything.

Thank you Lord that my mother is still here to be loved and experienced.

Thank you mom for everything you’ve done and for being the warrior and inspiration you will always be to me.

Babs 360 Ride = GAME ON!

Would YOU like to contribute? Please click this link.

In Honor of Barbara Johnson - Hurnyak

07/10/2024

Why am I even doing the Babs 360 Ride?

From the day this all started with my mother, all she wanted to do was understand what was happening to her, what it meant and what could be done.

It must have been terrifying for my mother to Google - Glioblastoma grade 4 prognosis - and the first result she saw was: The average glioblastoma survival time is 12-18 months – only 25% of patients survive more than one year, and only 5% of patients survive more than five years.

“Where is all the research”

That’s how my mother chose to face her fear.

The science currently hasn’t reached a point for a cure. There are cases and trials, but for the majority of people who are diagnosed, the only treatment option gives a patient a few more months and it’s been this way for decades.

So what do you do when faced with this?

My mother chose to focus on what could be done, and that is inspiring.

I am so proud of my mother and the fact that her spirit has inspired each one of us who are supporting the Babs 360 Ride to do something.

We are close to $7000 and that wouldn’t have been possible if it wasn’t for all the magnificent people who have stepped up and helped us contribute to find a cure.

In a world that is so caught up in division, we came together and we are doing something worthy.

That’s amazing!

It’s not too late to get involved.

In Honor of Barbara Johnson - Hurnyak

06/28/2024

Completely blown away! Just got a $500 anonymous donation for our fundraiser which put us up over $6000.

Whoever you are - thank you so much!

Only $4k to go! We can do this

To donate or share and help spread the word, click this link:

https://fundraise.gbmresearch.org/fundraiser/5514271

06/28/2024

Had such a good experience spending some time speaking with Michael Zinn last night.

We covered a lot last night ranging from creativity, spirituality and my mother’s journey. Mike was great to speak with. Just a really authentic and gracious host. Thank you Mike for this moment.

This podcast is now up - check it out.

Join us for an inspiring episode of The Livestream of Consciousness as we welcome Eric Hurnyak, an endurance cyclist and dedicated advocate for glioblastoma ...

06/26/2024

https://www.youtube.com/live/sdGMkc4rIxw



Hello All! I'll be having a live stream chat this Thursday night with Michael Zinn. Hope you can tune in!

Join us for an inspiring episode of The Livestream of Consciousness as we welcome Eric Hurnyak, an endurance cyclist and dedicated advocate for glioblastoma ...

03/20/2024

Great project we did working with the Middle Country Public Library

03/06/2024

Imagine experiences where art brings communities together, where every stroke of paint tells a story, and where creativity knows no bounds. These are exactly the experiences we have worked to develop with our clients since 2012.

Through our community projects division, the Long Island Creative Vortex, we specialize in creating interactive community-based projects centered around a theme. These projects are designed to inspire creativity and foster collaboration among participants.

Working closely with our clients, we select a theme that resonates with the community. Together, we bring this theme to life through a piece of artwork that serves as a blank canvas for collective expression.

During our events, participants are invited to unleash their creativity as they paint alongside their neighbors, friends, and fellow community members. It's a joyous celebration of art and collaboration, where everyone has a voice and a brushstroke to contribute.

By bringing people together through art, we not only create beautiful pieces of work but also strengthen the bonds within our community. These projects serve as a catalyst for inspiration, connection, and positive change.

To learn more about our community projects and find out how to commission a project for your own community, please have a look at our past projects gallery on our site at
https://soundbeachsigns.com/community-projects/
and reach out to us at [email protected]

03/01/2024

02/16/2024

One year ago today, I was sitting in the hospital with my mother learning that her life would never be the same.

This past year hardest thing we have ever had to face, but through it all I have learned so much about this disease, life and love.

I have to say, that before my mother was diagnosed, I had never heard of Glioblastoma before. I was shocked to find that it makes up nearly 50% of all malignant brain cancer diagnoses at this point. It is also the least funded and has the least amount of awareness.

My mother wanted to fight this disease and was very interested in any clinical trials or research projects. Unfortunately, her case was very advanced when we got our diagnosis, but she was still inspired to ask questions and see what was available.

In that spirit, I will continue to place my efforts on bringing awareness and seeing how I can contribute to help others who have been affected by this disease.

I joined my latest cycling challenge to honor my good friend Jon McRae, but also to see the inner workings of how these fund raisers work so that I could set up my own to honor my mother and what we have been through.

While doing research, I came across the Glioblastoma Research Organization.

The Glioblastoma Research Organization is a 501(c)(3) nonprofit organization raising awareness and funds for new global, cutting-edge research to find a cure for glioblastoma. The organization was established in 2018 and, to date, has provided support to doctors and researchers through six fully funded projects at U.S. based leading cancer centers. GBMRO has also donated over $300K+ in the last two years and has partnered with GBM-related projects around the globe.

The Glioblastoma Research Organization itself does not engage in medical research, however it funds doctors and institutions that do so.

Amber Barbach, Founder and Director oversees administration, investment management and charitable research funding and brand partnerships for the organization. She leads the design of the overall project funding strategies and policies emphasizing the needs of Glioblastoma brain tumor research.

Amber has a personal connection to her brain cancer advocacy work. She lost her father, Lee Barbach, to Glioblastoma brain cancer in 2018.

I reached out to this organization last week and had a great conversation this morning with Azul Diez, the Director. I feel we could be laying down a good foundation to work together on creating projects to raise funding and awareness.

They have a lot of resources and they have expressed an interest in supporting my efforts as we move forward. We discussed organizing a virtual challenge (like the one I am currently doing), along with a couple other possibilities.

Here is a link to the site:
https://www.gbmresearch.org/

More news to come. There is an event I will be getting involved in this coming May that I will begin to promote.

GLIOBLASTOMA RESEARCH ORGANIZATIONRaising awareness and funds for new global, cutting-edge research to find a cure for Glioblastoma. The Glioblastoma Research Organization is a 501(c)3 nonprofit. Donate Now Together, we will find a cure.   Investing in Glioblastoma-specific rese...

01/14/2024

Anyone else having this issue on messager?

Not sure what’s happening, but I have a few different business pages which in the last day or so have all gotten hit on messenger with an obvious phishing scam DM that says:

Your account has been detected in violation of our current copyright policy. For security reasons. and To prevent permanent deactivation of your account, follow these steps. In more serious cases, we will cancel your report immediately. if you do not confirm, our system will automatically block your account.

I haven’t clicked any links because I knew it was BS, but almost every page was hit.

I’m now seeing a few other people are having the same issue.

Here’s a link that explains what it is:

Facebook is home to over 2.9 billion active users, making it the biggest social media platform in the world. With such a massive userbase, Facebook

12/27/2023

New projects in the works for 2024!
Stay tuned...