Kolters warriors

Kolters warriors Please share, follow, and support🙏🏽❤️🙏🏽❤️

This is a page for my son Kolter’s next step in our battle against hyperplastic left heart syndrome (HLHS) we have recently been informed our next viable option and steps are a heart transplant.

Kolter- “can we take a picture for my friends this morning”
06/05/2026

Kolter- “can we take a picture for my friends this morning”

Sadly we will be stuck this weekend with a FULL cathe on Monday while it seems like bad news it is good, this is our BIG...
06/04/2026

Sadly we will be stuck this weekend with a FULL cathe on Monday while it seems like bad news it is good, this is our BIG cathe to do a lot of preventative and needed “maintenance” and potentially the last procedure before transplant placement. That being said kolter was set to hand out a trophy at the summer fest I will video him the cars and then present the on he chooses. But an awesome nurse we have had before saw the MISSING monster truck from our collection at target and said she HAD to get it so he’s a very happy boy this morning. Sometimes little things just make the day a little better, thank you for the messages and love!

06/04/2026

Hypoplastic Left Heart Syndrome (HLHS) is one of the most severe and complex congenital heart defects, affecting the entire left side of the heart.

In a healthy heart, the left side pumps oxygen-rich blood out to the body. But in babies born with HLHS, the structures on the left side of the heart are critically underdeveloped. The left ventricle is too small to function properly, and the mitral valve, aortic valve, and aorta may be extremely small or not formed at all.

Before birth, babies survive because of two natural openings in the heart called the PDA and PFO that allow blood to circulate differently in the womb. After birth, those openings normally begin to close.

But for babies with HLHS, the PDA is often the only pathway allowing blood to reach the body.

When it begins to close, blood flow to vital organs rapidly decreases. Without treatment, HLHS is fatal.

Most children with HLHS undergo a series of three open-heart surgeries:
đź«€ Norwood
đź«€ Glenn
đź«€ Fontan

These surgeries are not a cure. They are palliative surgeries designed to reroute blood flow and help the heart function as effectively as possible.

And even after surgery, HLHS is lifelong.

Children and adults living with HLHS often face ongoing complications including arrhythmias, low oxygen levels, heart failure, liver and kidney complications, protein losing enteropathy, and some may eventually require a heart transplant.

HLHS is not “fixed” after surgery.
It requires lifelong specialized cardiac care, constant monitoring, and incredible strength from the patients and families living this reality every single day.

Today we honor the heart warriors born with HLHS, the families walking this journey, and the babies whose stories continue to live on in the hearts of those who love them.

If HLHS has impacted your life, we would love for you to share your story below. ❤️

Well we had another episode and have been moved back to our home away from home sadly. We are in good spirits and just h...
06/03/2026

Well we had another episode and have been moved back to our home away from home sadly. We are in good spirits and just hanging out waiting for a plan and monitoring. Don’t forget our raffles, and event with any luck we will see you JUNE 28th at Phelps county fair grounds! I will keep the page updated on our stay thank you all!

We took some time to enjoy the weather and family and the things we love! Don’t forget get your tickets! And get ready f...
06/02/2026

We took some time to enjoy the weather and family and the things we love! Don’t forget get your tickets! And get ready for the event! Lots of goodies, family fun, June 28th be there!!!!

•GUYS WE HAVE ANOTHER BIG ONE•In honor of it being Car Show/Auction month we have another waffle! We would like to give ...
06/01/2026

•GUYS WE HAVE ANOTHER BIG ONE•

In honor of it being Car Show/Auction month we have another waffle! We would like to give a big thank you to Smith’s Outdoor Services for this!! Come get your tickets only 200 tickets available!

•Please put your name and number when you send money in!•

It’s getting exciting guys! Don’t forget JUNE 28th Phelps county fair grounds! CARS/FOOD/LIVE AUCTION/CORNHOLE TOURNAMEN...
05/27/2026

It’s getting exciting guys! Don’t forget JUNE 28th Phelps county fair grounds! CARS/FOOD/LIVE AUCTION/CORNHOLE TOURNAMENT/DJ BOOTH
and for the kids! BOUNCE-HOUSE/PONY RIDES
5$ entry free, food prices will be posted later burgers,hotdogs,chips,drinks, pulled pork nachos
Also a donors representative to sign up to be an organ donor!
Auction items will be posted prior to event many baskets from local businesses, BRAND NEW generator,leaf blow, navigator 1000 smoker, 2 halves of fresh pork processed, deer mounts, baked goods, oil and propane, out door smudge pot, gift cards, tool sets, and MUCH MORE!!! Door prizes and trophies for the carshow! Tell your friends/family/ tell a stranger and don’t forget get your raffle tickets! We’ve got another one coming! Come support a great cause,have some fun and gain some knowledge!

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Hope Street
Rolla, MO
65401

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