Mandy Montgomery

01/30/2026

I am hosting Rally for Rare DC/DMV area February 28th 2026. Let’s connect! Can’t wait to see you there!

📣 Be on the lookout!
A Rally for Rare event may be coming to a community near you! Join us as we come together to support individuals and families affected by Congenital Melanocytic Nevus (CMN) and raise awareness for rare conditions.
These gatherings are all about connection, visibility, and showing the world that rare matters. 💜
Stay tuned for details and be ready to join us when Rally for Rare comes to your area!
🔗 Register & find events near you: nevus.org/events

01/29/2026

Following an incredible Nevus Adults gathering in Milan, this special experience is coming to Orlando, July 23–26, 2026 ✨
Designed exclusively for adult nevus owners, this social long weekend is all about connection, laughter, and shared experiences—before the AMPLIFY Conference begins.
Come as you are. Stay as long as you’d like. 💙
Join your hosts Steven, Raissa, and Mandy and be part of a community that truly understands.
👉 Register your spot today at nevus.org/events

01/22/2026

🤠 The countdown is on, Kansas City! 🤠
Light the Night KC is almost here, and the excitement is building! Saddle up for an evening of line dancing, community, and shining a light on CMN awareness and research. 💛✨
🎟️ Don’t wait—secure your tickets before they’re gone: nevus.org/ltnkc

04/10/2025

First gig of the year tonight. Come get down with us at tonight. 🤘💋

02/28/2025

Rare Disease Day is my favorite day of the year because we get to celebrate my rare friends across the globe!!! I was born with Giant Congenital Melanocytic Nevus, as of last week I went through my 64th surgery. I am healing faster and better than expected! For the last years it became very apparent that something in my abdomen was growing abnormally. It became uncomfortable, painful, and very hard to hide. Today I feel more free and comfortable in my body than I ever have before. Thank you Dr. Gusenoff and his team for doing such an incredible job at the removal of the issues growing and reconstruction of my abdomen. I am so excited to wear clothes that fit my body properly, bathing suits, and to show off my spots in shorts this year! Being healthy is the best prize of all! I will be uploading content over the next weeks going more in depth about the treatments, surgeries, and the effects over the next months of my life. Please consider donating to They are providing life saving research and resources for people like me. The last photo is me seeing myself for the first time since surgery

02/20/2025

Today I am having my 64th surgery, and, tomorrow I am grateful to be turning thirty-two years old. I post in honor of the upcoming holiday, rare disease day. I live with Congenital Melanocytic Nevus. I spent this past weekend in Washington DC celebrating at the Rally for Rare. It is incredible seeing all of the gorgeous people living bold and owning their rare with my family. I am truly so grateful for all of the people I was able to connect with this weekend. After hiding my skin up until a few years ago I am so proud of being me. I love my resilient body, free spirit, and sexy skin. I am so thankful to be alive. Thank you to my friends, family, and extended support all over the globe that have truly transformed my life and how I love myself. For my birthday please consider donating to the lifesaving research and incredible organizations below. I am so happy to be able to advocate and bring awareness for and

01/02/2025

You can’t wait until life isn’t hard anymore to be happy.

10/26/2024

The time is near! This Sunday October 27th we will be performing our live soundtrack to the 1922 classic Nosferatu and I hope you’re ready to meet the Count live and in the flesh! Stoked to announce that our friend will be in house and taking pictures with anyone brave enough to enter. Come early and get a photo! This Sunday! // Doors open at 4:30. kicks off the music at 5:30. Free Admission. All Ages. Noseferatu Meet & Greet is at your own risk. 😎

09/17/2024

Thanks for truly loving me for who I am. I always thought I was cool with being alone, then I had you.

09/11/2024

Another super sick show in the books for ~~~We play next Saturday, September 21st at See you there 😘~~~