07/22/2026
• Mind What Matters Podcast The one where Liz cries. 🤣 Guys, this was a special episode with an FTD caregiver who wrote a children’s book!
If you’ve ever had a child ask you-what’s wrong with grandma or grandpa, this episode is for you. Thank you Sarah!
Nikki DeLoach and Elizabeth Humphreys sit down with author, educator, and caregiver Sarah Maguire Marston to talk about one of the hardest conversations many families never expect to have: explaining dementia to children.
After Sarah’s mother was diagnosed with Frontotemporal Dementia (FTD) and Primary Progressive Aphasia, she struggled to help her young children understand why their grandmother could no longer speak, play, or tell them she loved them. That experience inspired her to write When I Can’t Say I Love You, a children’s book created to help families navigate dementia with honesty, compassion, and hope.
Together, Sarah, Nikki, and Liz share their own caregiving experiences, discuss the unique challenges of Frontotemporal Dementia, and explore why children often understand more than we realize. They also talk about anticipatory grief, family communication, memory care, and the lasting connection that remains even after words are gone. This episode is a reminder that while dementia changes how we communicate, it never changes the love that remains.
