12/16/2021
Personal Announcement:
I am sorry to report my sub- drumming & acting career has come to an end. After 40 years. I thank each and every musician& actor who ive had the pleasure performing with from coast to coast will remain my my soul Forever, precious memories. Never will I say never, but for now your " Shuffle Queen" drmmergirl has a lot if healing to do.
Dear friends and family I know most of you have been following my health crisis and all the testing I Have had to endure.. 1st off my heart goes out to all of you for your constant support & prayer. I will never forget each and every one of you.
Sadly after much despair frustration, humiliation, Worry,, pain and stress my final diagnosis has has been confirmed, For the past 31/2 Years I have been bed ridden and riding around in a wheelchair. Not knowing why?? Outt of the blue one night after playing drums I just lost my balance and then my legs went numb.. All this time I have been so stressed out worrying what I have having to endure hundreds of tests for this mysterious and very uncommon Auto immune disease called called CIDP which is a chronic form of GBS.
( I've added a medical Description in this post as it is a very rare disease) /GBS/CIDP odds are 1-10 out of 100,000 to get this painful and paralyzing diagnosis . The most recent studies Include finding a direct cause Relating this disease to the H1N1 SARS Cov-2 bird flu vaccine, reg flu vaccine. And a Tetanus shot, among other vaccines ( see below) All which I took 4 years ago.
I REGRET NOW!. Never any warning was given just one day I couldn't walk anymore out of the blue out and I kept falling down,, then noticing weaker and weaker muscles in my hands and arm muscles ( noticing I was dropping my spoons and drumsticks too often)I noticed all the time after playing all night on the drums at gigs. I thought I was just getting numb after 4 hour gigs sitting on my drum throne, until I went in for MRI & Cat Scans etc. After being Hospitalized over and over again they finally found what they call 2 lesions in my brain so they assumed I had MS. Then they discovered a mass on my kidney too too so I went to tune neurologist to get a second opinion I even went to the ClevelanBrain clinic to figure out what exactly was going on with me and all that time I thought it was Lyme disease because I did get bit by a tick in 1992 a New Hampshire outriding my dirt bike and a mother tick laid eggs in my ankle before I got to the hospital to have them removed. I'm too upset right now to continue on with this if you have any questions feel free to ask me about this Illness because now it seems like it's becoming more common with people getting this mysterious diagnosis right after the covid 19 vaccines !!! Tto lose your freedom and your mobility ,the life you once knew and will never be the same again. Can't work. Medical equipment & handicap vans so expensive, then the toll it takes on family or caretakers, etc, etc. Sadly there is no cure it just continues poisoning the body & mind by time, I can't stop crying because I have lost a lot of family of family friends that don't understand not too mention, my 12 year old boy, Harley who lies next to my medical bed very depressed why I can't walk or play with him anymore, it breaks my heart everyday! And lately he doesn't seem to wanna get close to his mommy anymore. Anyway..
I'm too upset to write anymore.
May God continue to bless all of you and I will keep praying for you and myself that someday they will find a cure for all deadly diseases. Including those of us who remain .paralyzed in a wheelchair
I need my music more than ever. So after 40 years of being a professional drummer an artist and an actress this seems like my final curtain I will take a bow curtain call for now . I have always been a fighter and I plan to fight this! I hope there is some stem cell research because there's not much else they can do for people that have this Very painful and awful lonely diagnosis. I will leave by saying please hug your family and your friends as much as possible travel when you can and enjoy life when you have your arms and legs still attached say a special prayer for our disabled veterans that are going through wheelchair life like me and also to all the other young people who never got to enjoy their life..like my friends with Cancer, etc. I can't stand it when people complain about the small stuff! They have their health and mobility which is most precious.But Sadly they they take it for granted . Merry Christmas and I hope you have a great New Year may God-bless each and every one of you .Ciao 4 NOW ( sorry for length, had to vent) ^ How Blue can you Get? " and" I'll have a Blue Xmas without you"...turn it up!
