05/26/2026
Hey friends, update time.
I’ve been quiet because the past several weeks have been a lot, and I wanted to wait until I had a clearer update before trying to explain everything publicly.
On April 17, I went to the ER for a POTS-related tachycardic episode. After that ER visit, I started having what began as headaches and then turned into daily, debilitating migraines.
Since then, I’ve been back to the ER three more times. I had a CT with contrast, another CT, and an MRI. Neurology originally couldn’t see me until February 2026, but after more ER visits and following up with my P*P, she was able to call and get me seen sooner. Even then, it still took a couple more weeks.
Today I finally had my first neurology appointment.
The good news is that the neurologist said all of the scans from the ER visits were reassuring. She also confirmed that what I’ve been experiencing are, in fact, migraines. So that is the official diagnosis now.
We may never know exactly what triggered the first migraine, but we did find out that one of the medications I was given by the ER, Flexeril, may have actually been making things worse by contributing to rebound migraines. That, combined with the ongoing pain, poor sleep, frustration, depression, and the general stress of not having answers, seems to have created a really awful cycle.
The plan now is to start a beta blocker tomorrow morning while carefully monitoring my heart rate because of the POTS. She also gave me samples of Nurtec to try, since Imitrex did absolutely nothing and this has been pretty medication-resistant so far. She said to expect it to take around 5–6 days to get the migraine under control, which feels like forever, but at least there is a plan now.
I also had therapy this morning, and honestly, it was rough. We talked a lot about how much this has affected me mentally, not just physically. Sitting in a dark, silent room may help the pain, but it has been really hard on my mental state. For me, that kind of “rest” does not always feel restful. It can feel more like being trapped inside my own nervous system, and I’m realizing I need to learn better ways to cope with that.
This has been scary. I’ve seen how migraines and chronic health issues have affected people close to me, and growing up with a chronically ill parent means this kind of thing gets in my head in a way that is hard to describe. It has affected my self-care, my family, my mental health, my creativity, and my ability to work.
Business-wise, I’m still figuring out what this means. I am hoping to be able to work again by the end of June, but I will probably have to decline most of my Pride events, which is genuinely heartbreaking because they are my favorite events of the whole year. I am trying very hard not to spiral too far ahead, but the fear around how this has affected and could continue to affect my business is very real.
I am hopeful this treatment plan will work. I am hopeful I can get back to working, creating, showing up for my kids, and feeling like myself again. I am also still struggling right now, and I am trying to be honest about that.
Thank you to everyone who has checked in, been patient, offered help, or understood when I had to cancel, pause, or go quiet. I appreciate any thoughts, patience, and offers of assistance while I try to get through this next stretch.
