08/04/2026
Painting #8 OUR EPILEPSY COMMUNITY of the Motivational series.
The epilepsy community is really different than most communities for medical conditions because of so many distinct types of seizures, the 160+ Seizure Disorders that fall under the diagnoses of Epilepsy, the 30+ anti-seizure medicines with so many possible side effects on the market and every case of epilepsy being different makes the sharing our experiences and knowledge is extremely helpful to others living with the condition.
Working as an advocate I have been able to help three people find an epileptologist, leading to them being able to have surgery becoming seizure free or greatly reducing the number of seizures they have. I have also had people tell me that sharing my experience of brain surgery being successful, getting me seizure free while still on medicines gave them the confidence to go through with the surgery option, their doctors had given them of which they were afraid.
We can help each other in more ways than we realize just by sharing our own stories. We can also explain the symptoms of each type of seizure to newly diagnosed members of the groups and tell people who are being switched to a new anti-seizure medicine what side effects it causes on us, so they can know what issues to look for like the most well know terrible side effect out there “Keprage”.
Every case of epilepsy is different, we all have different trigger combinations, and we all react differently to each medicine, so the more information we get from others the more chance we have of figuring things out.
I did a painting in this series about The Epilepsy Community being over 65 million people fighting together, but that number has been used for over a decade now while the number of reported cases in the US alone has gone up by at least 400,000 during that time while some websites are still saying only 50 million. We really need a new accurate count of the number of worldwide cases!