Aedan Pio

Aedan Pio Painter who lived life to the fullest with 🧠 clival chordoma for 13 years. 🪐 One with the stars. ✨ I am Aedan Pio. I love the solar system, lego and subway surf.

I love reading about the planets and I love making clay models of our Milky Way galaxy. I told my mom I want to be an astronaut at NASA. I learned to read when I was two and I learned to write when I was three. I am now four years old and I have cancer. I have Chordoma. They said it is a rare type of bone cancer that occurs in the bones of the skull and spine. I was told I was one in a million. I

was told I was the youngest patient they have. They told me the average survival is 7-9 years if treated. They told me there is no approved drugs for it and that it is difficult to treat and require highly specialized care. I was told I was rare. I was told I was uncommon. I had my first craniotomy this July 8, 2015 at Philippine General Hospital. My doctor - Doc Gap was able to removed 40% of my grapes (tumor). I call it grapes because it looks like grapes inside my head. He said the remainder is now shaped like a butterfly around my brain stem and he couldn't do it. The remaining 60% will be done by Jesus. I always tell mommy it is Jesus who will remove the rest. Although my cancer is uncommon I feel okay. Although my speech is now slurred and although I walk with a limp now - I know I will be okay. My doctors told me there is a treatment - even if they cannot remove the remaining grapes - I was told proton beam therapy can. But there is no proton beam therapy here in the Philippines and it would cost my mommy a lot. I hope there would be people out there who can help me get my cure. This is my story. This is the story of other kids in my country who may have Chordoma like me. I hope I can be given a chance to have my grapes removed. August 2015

What survives death are the ordinary moments we almost forgot to treasure. I really appreciate this pillow as gift for M...
20/05/2026

What survives death are the ordinary moments we almost forgot to treasure. I really appreciate this pillow as gift for Mother's Day. Maraming salamat. ā¤ļøā€šŸ©¹āœØšŸŒ™

15/05/2026

ā¤ļøā€šŸ©¹

A mother's love does not end at death it just changes form. Mine became a ritual, a memory... Or a playlist of songs and...
14/05/2026

A mother's love does not end at death it just changes form. Mine became a ritual, a memory... Or a playlist of songs and flowers from the grocery. It's now the excitement to see Jupiter on the night sky or the instinct to still answer ā€œtwoā€ when people ask how many children I have because the love I have for Pio (and Bellamy) was never built only for the living.

Pio is still my son and Bellamy is also my son. I am still their Maaa in every universe my heart can imagine... I strongly believe that nothing, not even death, has enough authority to undo that bond. And grief is proof that love learned how to survive without a physical body.

If you've been reading all my stories that I shared about Pio, he knew. I am proud Pio knew he was deeply adored as kids don’t memorize safety through grand speeches. They learn it through presence or being held. He feels it in our hospital staycations that became familiar instead of frightening because I was there with him. I truly hope he felt my love thru his art classes, corny jokes, weekly massages, exercise routines, and ordinary breakfast mornings we used to share... it was hard to keep showing up even if I was breaking myself but I'd do it again. Over and over.

I also hope Bellamy carries that love too. Sometomes I see it in the way he clings to me in photos like I am both his anchor and universe. In a way he calls me "Mooooom" like I was HIS person. And maybe that’s why the grief is so heavy today... I know love did not fail and instead, it succeeded so completely and unconditionally.

I once told Pio maybe in Jupiter he could stand, walk, and paint again, and his eyes lit up. Ever since, I’ve carried this image of P somewhere cosmic and limitless, finally unburdened, still orbiting my love the same way his orbits mine...

And today lemme just post these snaps from our last mother's day together in 2023 because I miss taking photos of the three of us together. šŸ«¶šŸ»šŸ’–

I still answer ā€œtwoā€ when people ask me how many kids I have because I don’t stop being your Maaa just because you died....
10/05/2026

I still answer ā€œtwoā€ when people ask me how many kids I have because I don’t stop being your Maaa just because you died. I love you Pio and we miss you this Maaather's Day. ā¤ļøā€šŸ©¹

Trigger Warning: child loss, cancer, grief, Mother’s DayThis is my third Mother’s Day without Pio and I wrote about the ...
09/05/2026

Trigger Warning: child loss, cancer, grief, Mother’s Day

This is my third Mother’s Day without Pio and I wrote about the scream I never got to release when Pio was diagnosed, the survival mode that carried us for years, and the kind of motherhood that continues even after death because I am still his mother.

To every mother missing a child this Mother’s Day, I am holding you close. And to everyone who continues to remember Pio with me and Bellamy, thank you. It means more than I can ever fully explain.

READ:

Apparently, survival mode had an 11-year lease and my nervous system would like to speak to the management please?

We woke up today ng humihikbi si Bellamy. He was pointing to the window and crying, ā€œThe sun is back… I wanna go back ho...
09/05/2026

We woke up today ng humihikbi si Bellamy. He was pointing to the window and crying, ā€œThe sun is back… I wanna go back home.ā€

He meant sa Pinas.
Kina Mallows and the dogs.
Sa P house ni Titah Angel.
Sa Monteverde kina Wolo and Wola.
And lastly daw...
Our home we shared with his Kuya Pio.

Since Bellamy was born, that apartment held his routines, his growth, his comfort and now, in the quiet of a new country, far from everything familiar, it finally hit him: He is missing it.

I thought we’d managed the transition gently. After all, we went to his favorite beach after we moved out. We lived with my sister and he had Roblox party every night for two weeks. He was laughing, distracted, joyful. But Bellamy, in his own time and way, is now mourning everything he couldn’t process back then.

We laughed when he calls himself homeless a couple of weeks back and refused to let go of any toy... each one tucked away carefully in a Megabox that he knows is locked safely in storage.

And suddenly, I see it:
This isn’t just migration.
This is grief.
This is a goodbye to a life he loved.

I used to think children bounce back easily. But I should’ve remembered... Bellamy thrives in routine. He remembers everything. He feels deeply, even when he can’t name it all.

This morning, B and I held space for the ache.
And slowly, we’ll help him rebuild safety here, not by forcing joy, but by making room for all his feelings.
Because just like me, he’s adjusting too.
Missing what was.
Loving what is.
And learning that being with Daddy now doesn’t erase the ache for everything we left behind.

To everyone, thank you for holding space for Pio with me. For remembering him, for saying his name, for sharing your own...
05/05/2026

To everyone, thank you for holding space for Pio with me. For remembering him, for saying his name, for sharing your own grief so mine doesn’t feel so alone.

Wala nang hihigit pa sa sakit ng isang inang nawalan ng anak. It changes the way you breathe, the way you move through the world… the way you love.

I am dreading Mother's Day but I will be here to remember. To sit with the kind of love that doesn’t end, even when presence does.ļæ¼

If you still have your children in your arms, in your home, in your everyday… I hope you pause. Kahit sandali lang. Be still in your love. Feel it fully. Don’t rush it.

Because I would give anything… anything… just to hold mine again.

And to those who carry this kind of grief too, I see you. I’m with you.ļæ¼

4 month old Aedan Pio šŸ«¶šŸ» miss your voice so much Pio always everyday... I haven't seen you in my dreams for almost 15mon...
04/05/2026

4 month old Aedan Pio šŸ«¶šŸ» miss your voice so much Pio always everyday... I haven't seen you in my dreams for almost 15months now. When ka ulit dalaw? Love you Pio.

We are still made of each other. I miss you very very very much, anak.
29/04/2026

We are still made of each other.

I miss you very very very much, anak.

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