19/10/2026
ECMS is proud to support Inside Out Day 2026. Through our Director Sarah Allen, We’ve seen first hand the incredible work Debra Ireland does for those living with EB and their families. There is no cure, there is no medicine, they won’t grow out of it. All there is is support and advocacy.
“We couldn’t be more fortunate that Bonnie’s subtype is not as severe as some but that is in no way lessening the care she needs and will need and we are so lucky to have. The slightest friction or general fall another child might have is a full blister and an open wound that ultimately will never fully heal to its original strength.”
Inside Out day will take place on October 21st. Wear your clothes inside out and encourage people to ask you why! The seams on the inside of our clothes can literally rip the skin of a child with EB, that is how fragile these butterflies are. All Debra want to do is fight for them, support families needs and do everything they can to make life more comfortable and we will be forever grateful for them.
If you’d like to support Debra, here is Bonnie’s link to donate to Inside Day.
https://www.idonate.ie/fundraiser/11681093