Jacobs 22q Family Adventures

31/12/2025

From us lot to you lot ❤️
It's been a bit of a hectic end to 2025 for us but we promise to do more updates in 2026 have a great time no matter what your doing ❤️

05/09/2025

Anyone who knows Jacob knows he loves Minecraft as well as lego i just could not resist this t-shirt he went through a stage of saying this every 5mins 😂

29/08/2025

But dad im not hungry don't want fishfingers
Oh right 😂

29/08/2025

28/08/2025

WOW its almost time to go back to school we are all set now with new hair cuts to match.
Considering the start of the holidays wasn't great we have definitely been busy after jacobs recovery and we also have a busy weekend ❤️
Who else is ready for school

26/08/2025

Sometimes rainy day games are just better 😉
Who else remembers this classic

01/08/2025

Yep he back and back to normal
Had to hold camera down due to other people being around thank you to everyone that wished him well and for all your support ❤️

30/07/2025

All went well with Jacobs op he is now in recovery

30/07/2025

Quick update
Mum and Jacob are at Brompton they are both checked in.
Jacob has had his scans done and all looks OK although as usual they couldn't get enough to do his bloods.
They are going to try opening the arota with a balloon 1st of all to see if that works if not they will go with a stent.
It looks like Jacob will be 2nd in que this morning.

29/07/2025

Well today is a day that we was hoping would either come later on in life or not at all but in all fairness we was told that when Jacobs aorta was fixed as a baby it may thin as he gets older and unfortunately this is what's happened he has his surgery planned for tomorrow but as we all know with appointments things could work out differently with beds being needed and strikes we will just have to keep our fingers crossed. Jacob is going into have a stent put in to help strengthen this. As a family even though we are used to hospitals used to appointments used to travelling and used to one parent doing one and the other parent having to do another thing being apart is probably the hardest thing for us all so please bare with us throughout this time.
It has been a very difficult month for us waiting for this day to come we still have Connor pets and other things to consider just as anyone else in our situation has.
Our family and extended family are all playing a part in this and everyone is helping us keep things together so we take this time to thank them also.

Update on other things
After years of fighting we finally have a diagnosis for Jacob of autism which has been a big relief for us he also has autistic ticks which explains alot of his behaviour we are also very proud of him as he has still been accepted into mainstream school and he is very excited about this.

We will try to keep you all updated as much as we can Thankyou for your support throughout this time.